The disease is exceedingly rare as well as difficult and expensive to treat. Cara said her mother spent in excess of $7,000 a month for just one of her prescription drugs.
With such stigma and mystery still attached to the disease, Cara said her mother would want to share her story if it might help others.
"She was a cheerleader her whole life," Cara said. "She was a cheerleader in high school, a cheerleader for her family and I know she would have been a cheerleader for other people like her."
If You Go What Merrill Osmond benefit concert for the Darlene Marie Thompson Scleroderma Benefit Fund When Event begins at 8:30 p.m. on Saturday Where Faribault County Fairgrounds Tickets $15 Notes Overflow seating is on lawn chairs. Opening acts include Kerry Summers and Tom Paschke. Merrill's performance will include a history of the Osmonds as well as selections from his recent recordings of Elvis Presley songs, many of which he's never performed live.